Bit disappointed today. What had promised to be a big day turned out to be more of a damp squib!!
3 weeks ago I underwent DBS surgery at the Atkinson Morley in London. Before I was discharged my battery ‘implant’ was turned on at a very, very low level. Today I was due to go in for the ‘major unveiling’; or as I told everyone (and is listed in my diary), the great ‘turn on’.
It was not.
I suffered again this morning by trying to stay, as requested, off my medication as much a possible, prior to this appointment, so that we (the Doctors and I) could see the improvement that this surgery would achieve. Sadly the results were not as impressive as I had longed for.
One of my younger brothers’ drove me in (as a last-minute replacement…driver-wise) and I expected to be in for a good few hours (as I had been informed). So it was no surprise to find that I was feeling pretty rough by the time I was dropped off and attended my appointment. After the usual pleasantries the Doctor reprogrammed me and changed my medication regime. Whilst still at a very low setting he did ramp it up a bit, and had me walking up and down the corridor, again and again and was happy with my progress.
But I was disappointed. I though the improvement would be much more marked.
But then again, I realised that this would be done gradually and that it was my expectations that were getting the better of me.
So, I go back in two weeks for another (longer) reprogramming session (and, maybe, even get to take a ‘remote’ home with me) but also to settle down into the reduced pill intake.
I remember now that I have to be slowly weaned off the medication. It cannot be done quickly and the process of reducing the meds whilst increasing the output will now take about 6 months.
So today was more of a Fizzle rather than a glorious turning on!!!
We shall see what tomorrow brings when I try the new regime from scratch!!